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Long-term health outcomes of people living with spina bifida

Centers for Disease Control - NCBDDD, Department of Health and Human Services

Deadline
October 26, 2026in 6 daysElectronically submitted applications must be submitted no later than 11:59 pm ET on the listed application due date.
Award size
$100,000 to $300,000About 19 awards
Matching funds
Not required
Fit for small groups
Better for larger organizations

In plain language

This grant pays for research to study the long-term health of people with spina bifida. It helps collect data and improve care for children and adults with this condition.

The money can pay for

  • Collecting health data on people with spina bifida
  • Evaluating treatments for spina bifida
  • Analyzing health outcomes
  • Sharing findings to improve care

Who can apply

Organizations such as nonprofits, schools, governments, and small businesses can apply, but not all types of nonprofits are eligible.

Is it a fit for a small group?

Better for larger organizations. This grant is for research and data collection, which is not typically something a small community nonprofit would do.

Before you apply

  • Eligibility is limited to certain types of organizations
  • The grant focuses on research and data collection
  • It is not for direct community services
  • Federal applicants need an active registration at SAM.gov and a Grants.gov account. Registration can take several weeks, so start early.

This summary was written by GrantGather with AI, based on the official listing. It can contain mistakes. Check the official listing on Grants.gov before you apply.

From the official listing

The purpose of component A (8-11 awardees) of this NOFO is to collect high-quality longitudinal data on children and adults with spina bifida (SB) who receive care in specialized spina bifida clinics participating in the National Spina Bifida Patient Registry (NSBPR). The purpose of component B (6-8 awardees) is to implement and evaluate the Urologic Management to Preserve Initial Renal Function Protocol for Young Children with Spina Bifida (UMPIRE) iterative protocol which aims to improve the management of the urinary and kidney systems in infants and young children with myelomeningocele. Building on existing longitudinal data collection, recipients will continue to collect data on patients with SB to better understand health outcomes after interventions and treatments, analyze the data and share findings to identify opportunities for improvement of care. An additional objective for…

Read the full description

The purpose of component A (8-11 awardees) of this NOFO is to collect high-quality longitudinal data on children and adults with spina bifida (SB) who receive care in specialized spina bifida clinics participating in the National Spina Bifida Patient Registry (NSBPR). The purpose of component B (6-8 awardees) is to implement and evaluate the Urologic Management to Preserve Initial Renal Function Protocol for Young Children with Spina Bifida (UMPIRE) iterative protocol which aims to improve the management of the urinary and kidney systems in infants and young children with myelomeningocele. Building on existing longitudinal data collection, recipients will continue to collect data on patients with SB to better understand health outcomes after interventions and treatments, analyze the data and share findings to identify opportunities for improvement of care. An additional objective for Component B is to finalize the UMPIRE protocol for children 0-10 years old with myelomeningocele. Sources of data are specialty clinics that care for pediatric and adult patients with SB

Opportunity number
CDC-RFA-DD-26-0222
Posted
August 26, 2026
Total funding
$3 million
Eligible applicants
For profit organizations other than small businesses
Public and State controlled institutions of higher education
Small businesses
Special district governments
Native American tribal governments (Federally recognized)
County governments
State governments
City or township governments
Nonprofits that do not have a 501(c)(3) status with the IRS, other than institutions of higher education
Private institutions of higher education
Independent school districts
Nonprofits having a 501(c)(3) status with the IRS, other than institutions of higher education
Assistance listing
93.073 Birth Defects and Developmental Disabilities - Prevention and Surveillance
Agency contact
Centers for Disease Control - NCBDDD
eut6@cdc.gov
7704882756
Open the official listing on Grants.gov